Events

One year to cure is the goal shared by parents of children with the CTNNB1 Syndrome rare disease. Out of approximately 400 known cases worldwide, 82 families with children gathered at the conference in ...

Ljubljana, April 17, 2024 – Ljubljana, April 17, 2024 – We attended the Economist Impact Cell and Gene Therapy Summit in Brussels over the past two days. 300 delegates and 60 speakers discussed on ...

The time has come! Or rather, it is around the corner :). A great kick-off ceremony awaits us, and you are cordially invited to join a galaxy of knowledge and wisdom. Below is a ...

The 9th National Conference on Rare Diseases Day 2023, which will take place on February 28, 2023 from 10 am onwards in a virtual format, is rapidly approaching. It will be directly broadcasted by ...